Tag Archives: Caregiving

Unexpected Happiness

Most people assume happiness comes from material things, especially in our consumer culture.  Not so, folks.  Happiness comes not from craving but from compassion and loving kindness.  I am an expert on craving.  Currently, my main craving is for ice cream.  I think about ice cream, I long for it.  I score!  I eat ice cream and have a fleeting feel good.  Then it starts all over.  I am suffering desiring the temporary fix that creamy, sweet, fatty stuff provides.

There are two main results.  I feel that discontent of no ice cream, eat ice cream, feel contented for an hour or so, than resume craving.  I am also getting fat.

There is another way.  Do good and feel good.  The good feeling doesn’t go away.  We are wired to help one another.  It comes from feeling compassion for someone who is suffering.  We then act out of loving kindness. The person suffering feels better and so do we.  They are feelings that don’t go away.

Many philosophers and economists say we operate on the pleasure principle.  Most of them assume pleasure results from satisfying craving.   The marketers exploit the craving and tell us happiness comes from the right beer, or car, or toothpaste.  In fact, they are exploiting suffering.

For the first part of my life I operated on that false pleasure principle.  I wanted stuff, temporary sensual gratification, alcohol, and ice cream.  I was something of a melancholy, trying to fill a void in my soul.  I then met the love of my life.  I was happy with her and looked forward to sharing satisfying cravings with her.  Food, stuff (lots of stuff), the mountains, the desert, canoeing, road trips, all those fleeting pleasures.

It turned out the love of my life is sick.  She has lupus, and can’t do many of the things I thought were the main goals of my life.  We can’t do road trips, she can’t be in the sun very long, she doesn’t have much energy, and she hurts.  All those fantasies exploded.

One of the benefits for me in meeting the love of my life is my commitment to her.   For better or for worse.  I cook.  I clean.  I do the heavy work of gardening, including maintaining that blasted sprinkling system.  I do Jin Shin Jyutsu(Japanese acupressure) three times a week I do shopping.  I lift, carry, move, assemble, and help in any way I can.  I scratch her back, we snuggle, we talk, laugh, and get cranky with one another.

Her family members have more trouble than they deserve.  I drove to Minneapolis to help her brother when his leg was broken by an errant automobile.  He has no support system there, so I went and helped out.  Her parents got old and infirm.  We visited Florida and North Carolina to help out.  We had lots of trips to Florida.  Her dad moved here when he could no longer handle the tasks of daily living.  Her mother moved to Boise to be with Carol’s sister and we visited there.  I also act as support for Carol’s two children, especially her son.

Blue Earth

All that seems like drudgery, inconvenience, and suffering.  Not so.  It is fulfilling.  I like to help, even if it means hundreds of miles of corn and soybeans on the way to Minneapolis.  Have you ever seen the blue earth clay west of Mankato (means blue earth) or the Nebraska sand hills?  Have you gotten lost on foot in downtown Minneapolis?  If not, you have really missed out.  The whole thing feels good.  Well, there is some inconvenience as well, but it is mostly happiness.   May you find happiness in helping others.

Caregiving the Hard Way

mental healthCarol and I attend a support group meeting for caregivers of mentally ill loved ones.  It meets at the Mental Health Center of Denver and is sponsored by the National Alliance for the Mentally Ill (NAMI).Carol attends regularly, but I stopped for a while because the stories are just too heart rending.  One person has been a caregiver for various family members since she was seven.  She did take a break for a while, serving as an Army nurse in Vietnam.   

Many attendees have more than one family member they are caring for.  The hard part for them is there is probably no end.  Most mentally ill people stay that way.  There is no stability.  Sometimes the loved one is doing OK for a long time, working or going to school, and then, bang, a psychotic break and repeated hospitalizations.  There is often financial instability, the loved one experiencing extended periods of unemployment, and being repeatedly denied disability benefits. 

In addition, the mental health system is broken.  Years ago, if a person was severely mentally ill, there was an extensive mental hospital system.  No longer.  The development of psychiatric medications and attempts to treat the mentally ill in the community ended the hospital system.  Today there is a host of agencies, some nonprofit, some for profit, and some governmental.  At least veterans have the VA, which does a fairly good job despite the overload.  There is never enough money, and too many people in need. 

Here in Denver, there are the Mental Health Corporation of Denver, Denver Health, several private agencies, the police, Social Services, halfway houses, Vocational Rehabilitation, detox, and others.  Navigating the system is time consuming, frustrating, confusing, and often a failure.  People have spent many thousands of dollars at private mental health facilities with no discernible effect.  All it has done is get the person out of the house for a while. 

A big one is the uncertainty.  If the loved one is doing well, it’s waiting for the next episode.  The person may just disappear for a while, only making contact when at rock bottom.  Some caregivers are relieved when their person is incarcerated.  At least they are relatively safe.  Safety, how can one insure that with a suicidal person?  There is a crisis system, offering telephone support, referrals, and sending a trained person with the police to the loved one’s home.    Sometimes it works.

There are tragedies.  One person was the high school valedictorian, then Cum Laude in college, then experienced a schizophrenic breakdown, and is gone with a shotgun barrel in her mouth.  I haven’t even touched on the alcohol and drug abuse problems, which are also mental health issues. 

Why do the caregivers do it?  They sacrifice huge chunks of their own lives, living with anxiety and uncertainty, for no financial reward.  They are caregiving for a loved one.  Love carries them through almost unimaginable adversity, and most caregivers still display love not only for their loved one, but also maintain a positive outlook on life.  There are those caregivers who flee, just not able to meet the challenge of a seemingly unending task.   

It is said that love knows no bounds.  For the caregivers in the support group, that is true.  We don’t see those who just lack enough love to stay involved for so long.  There are lots of heroes out there, you just don’t see them, for they are too busy to be visible.  I am able to hang in there for the loved one, but I can’t attend the support group every time; I just can’t deal with all the pain.